Sunday, April 01, 2007

I know that many of you have been praying for Noah & have been waiting for an update. The news we heard last has made it difficult for me to share what is going on. On March 5th we went back up to Buffalo to see the pediatric eye-specialist. The "wonderful" dr. spent about 7 minutes with us & told us this, "He's legally blind, he's likely to be retarded; won't ever drive a car... have a nice day." Jeff & I were left speechless - as we knew he had the nystagmus, but didn't know we'd ever hear "legally blind" - we had never even thought that, for Noah acts like any other happy lil' guy. After contacting our pediatrician, we now have this specialist's 2 reports on Noah: the 1st time he saw him he wrote his vision was 20/800, then this last visit was 20/200 - which is an "improvement of 600." We have a wonderful pediatrician & he has told us that because Noah is only 8 months old, that it's all merely a guess; Noah can't read an eye chart, tell us exactly what he sees, etc. So, the past month has been a whirlwind. A man from the NYS Commission for the Blind has been here, a lady from the county's department of Health, and a TVI (Teacher of the Visually Impaired) was here on Saturday. The TVI was very nice & said that Noah is doing VERY well - he tracks, he picks toys up, plays with them, crawls, stands up in his crib, etc - and we will just be working on helping him see distance better. Likely, when he is 3 or 4, he'll be wearing glasses. She also stated that Noah is a "learner."

It's a lot to take in. I've been doing research on colleges that offer Master's Degrees to become a TVI - which is likely what I'll persue. I'm thankful for Noah, the strengths he possesses, the joy he brings, & that his vision isn't as horrible as that "specialist" made it sound. We have learned that being legally blind simply means your vision is at 20/200 or higher. We are hopeful that his vision will improve; we have a God who is the great physician & healer. We go back up to Buffalo on April 24th to see a DIFFERENT specialist, for a second opinion. Please keep us in your prayers, as well as Noah.

7 comments:

Griffen said...

I am praying, believe in and have experienced miracles. Praise God for good news. He will get all the glory for every good report to follow.

What a sweetheart your Noah is. And those eyes are just breath-taking.

heidiann(e) said...

praying too.
sending love.

Rebecca said...

Liana~what a gorgeous picture of your little guy. His eyes are just amazing. You lose yourself in them!

I am sure you have lost yourself a few times worrying about them too. I am so sorry to hear all this news and how crass that specialist was. Put him OUT of your head and concentrate on the things that the respectable doctors/therapist/specialists have to say. I am fervently praying for your dear little guy and for wisdom and strength for you and your hubby.

God is good and has created His Noah to be the boy that he is for a reason. Blessings to you.

Abigail said...

I just prayed for him tonight when I saw his sweet photo on our fridge.

That specialist sounds irresponsible and graceless, no matter what God's plan is for Noah. I am so thankful that your pediatrician provided a balance, and I'll be praying that you and Jeff are upholded whatever you learn in the coming visits. I will pray for those beautiful eyes!

Laurie said...

Poor little man. That's a lot to go through in a short life.

What a wonderful mom you are though.

You will be in my thoughts.

Liana said...

Laurie -
Thank you for stopping by my site.

Friends, thank you for your prayers, I'm anxiously awaiting April 24th to see what the 2nd specialist says.
~Liana

Dave and Melissa said...

Liana - What a tough thing to have to face with such a beautiful little boy! So much joy and so much heartache all at the same time. But we like you believe that we serve the Great Physician and that he is able to do things beyond our wildest dreams! We will be praying for you, Jeff, and Noah during this time.

I loved looking through you blog entries. Its amazing how much Noah and Ben look alike! And so many similar pictures as they hit milestones at the same times!

Great to hear from you on our site! --Dave